儿童和年轻人的临终关怀 Palliative And End Of Life Care For Children And Young People

基本信息

Format:Paperback / softback 200 pages

Publisher:John Wiley and Sons Ltd

Imprint:Wiley-Blackwell

ISBN:9780470656143

Published:23 Feb 2012

Weight:320g

Dimensions:242 x 164 x 11 (mm)

信息仅供参考，具体请以实物为准

书籍简介

“安妮对我们了解癌症青少年需求的贡献是巨大的，如果没有她非凡的洞察力，我们的服务会少得多。”

摘自青少年癌症信托基金会执行官西蒙·戴维斯的前言

这篇主题鲜明、及时的文章为癌症和其他危及生命的疾病的年轻人提供了关于姑息治疗和临终关怀的选择和经验的宝贵见解。这份全面的新资源侧重于各种不同临床环境中的姑息治疗，探讨了家庭、临终关怀和医院的护理。它研究了家庭和年轻人如何以及在哪里获得姑息治疗，以及提供哪些支持来实现他们的死亡地点。讨论了对家庭的丧亲支持，以及多学科工作、机构间合作和资源问题的讨论。

这本书是社区儿童护士、专业姑息治疗团队、儿童临终关怀、学校护士、社会工作者和学生护​​士以及家庭的可读书籍。

·为患有癌症和其他危及生命的疾病的儿童和年轻人提供关于姑息治疗的全面资源

·及时且具有时效性，与卫生部姑息治疗战略“更好的护理：更好的生活”相结合

·以通俗易懂的风格撰写，不要求详细的医学或理论知识

·探讨在家庭、临终关怀和医院等各种不同临床环境中提供姑息治疗

·为父母、儿童和年轻人的经历提供宝贵见解

“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.”

From the foreword by Simon Davies , CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues.

This title is essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families.

A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses

Timely and topical, tying in with the Department of Health palliative care strategy ‘Better Care: Better Lives’

Written in an accessible style that does not assume either detailed medical or theoretical knowledge

Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital

Provides valuable insights into the experiences of parents, children and young people

作者简介

Anne Grinyer 博士是兰卡斯特大学健康与医学学院健康研究部高级讲师。她是健康研究部硕士课程的主任。她的教学涵盖一系列问题和主题，包括研究方法，特别强调健康相关研究的道德挑战。

Dr Anne Grinyer is Senior Lecturer in the Division of Health Research, Faculty of Health and Medicine, Lancaster University. She is Director of the taught Masters programmes in the Division of Health Research. Her teaching covers a range of issues and topics including research methods with a particular emphasis on the ethical challenges of health related research.

部分目录，仅供参考

Participants viii

Foreword xii

Preface xiii

Acknowledgements xv

Abbreviations xvi

1 Palliative and End of Life Care for Children and Young Adults 1

2 Home-based Palliative and End of Life Care 15

3 Hospice-based Palliative and End of Life Care 49

4 Hospital-based Palliative and End of Life Care 87

5 Preparation for the End of Life, Bereavement and Emotional Support 117

6 The Implications for Policy and Practice 155

Appendix: Methodology 169

References 175

Index 181